I met with my surgeon again this afternoon, it was a hellish adventure even getting there.
I missed the exit by 2 exits, called people for directions, and ended up going all over fucking Tampa, Hillsborough, Land O' Lakes, Ocala, and several other places before finally arriving there over an hour late.
Lucky for me my doc is a super understanding guy, and that Mindy has the patience of a saint, because I was thisclose to murdering the next person who gave us fucked up directions.
The good news is that he can fix my neck issues, but no date yet.
He wants to wait 2 more months, talk with some other specialist surgeons in this field, he's sending me for another MRI, another CT scan, and back to my pain manager doc until we pick a date for the surgery.
The bad news is that fixing my neck comes with a great deal of risks.
I have to decide if I'm willing to take those risks, and it's a great deal to think about, actually, it's overwhelming.
He has only 2 possible ways of fixing me, and they both come with the exact same risks.
There is a 10% chance of total paralysis, about a 10% chance of not being able to breathe on my own for about 3 months, I would end up having a trach tube installed, that hole thing they put in people's necks.
Other patients who have had this type of revision surgery have had the breathing issue, but after a few months, they are able to breathe on their own again.
And I WILL be in a full halo brace for a minimum of 3 months.
If things go wrong, I would end up being cared for by others for either just a few months, or for the rest of my life.
This is a lot to deal with, it's a great deal to take in, absorb, so I'm really hoping that after he talks with other specialists, that they will have a better idea of how to proceed, maybe another idea with a little less risks.
He did multiple xrays, he also took some still photos and a short video with his cell phone camera, so he can show the other surgeons my range of motion issues that I'm having, just how far my head is stuck down etc.
So anyway, forgive me if I'm not super miss happy go fucking jolly for a few days, I need some time to take this all in and adjust to what I learned today, and be hopeful that he can come up with a better plan, a better way to fix me with less risks.
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I missed the exit by 2 exits, called people for directions, and ended up going all over fucking Tampa, Hillsborough, Land O' Lakes, Ocala, and several other places before finally arriving there over an hour late.
Lucky for me my doc is a super understanding guy, and that Mindy has the patience of a saint, because I was thisclose to murdering the next person who gave us fucked up directions.
The good news is that he can fix my neck issues, but no date yet.
He wants to wait 2 more months, talk with some other specialist surgeons in this field, he's sending me for another MRI, another CT scan, and back to my pain manager doc until we pick a date for the surgery.
The bad news is that fixing my neck comes with a great deal of risks.
I have to decide if I'm willing to take those risks, and it's a great deal to think about, actually, it's overwhelming.
He has only 2 possible ways of fixing me, and they both come with the exact same risks.
There is a 10% chance of total paralysis, about a 10% chance of not being able to breathe on my own for about 3 months, I would end up having a trach tube installed, that hole thing they put in people's necks.
Other patients who have had this type of revision surgery have had the breathing issue, but after a few months, they are able to breathe on their own again.
And I WILL be in a full halo brace for a minimum of 3 months.
If things go wrong, I would end up being cared for by others for either just a few months, or for the rest of my life.
This is a lot to deal with, it's a great deal to take in, absorb, so I'm really hoping that after he talks with other specialists, that they will have a better idea of how to proceed, maybe another idea with a little less risks.
He did multiple xrays, he also took some still photos and a short video with his cell phone camera, so he can show the other surgeons my range of motion issues that I'm having, just how far my head is stuck down etc.
So anyway, forgive me if I'm not super miss happy go fucking jolly for a few days, I need some time to take this all in and adjust to what I learned today, and be hopeful that he can come up with a better plan, a better way to fix me with less risks.
That certainly is a lot to take in and think about Kat, I sure wish you had more family close by to help you, so you didn't feel so alone in this, I realize this really does "focus on you" but having the support right there with you helps, as I know you have your boys there and that ways on your mind too... keeping you in my thoughts and hoping the best solution for you comes out.....
We will be thinking about this too Kathy...It is overwhelming but some thing will work out for you I know it will. Love You
Wow. You've had more than your share of this stuff, dear. I'm sending lots of positive thoughts your way.
Kat, I don't even know what to say. Please know that I am thinking of you and hoping that these docs can collectively come up with a solution which carries less risk.